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DIFUPSET
Difficulties upset or distress child

Codes and Frequencies



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Description

For sample children age 4 to 17, whose parents said they had difficulties with emotions, concentration, behavior, or being able to get along with other people (EMODIFF), DIFUPSET reports responses to the follow-up question, "Do the difficulties upset or distress your child?" Interviewers handed respondents a flashcard listing acceptable responses: "Not at all," "A little," "A medium amount," "A great deal." Prior to 2019, the universe was further restricted to those with a known response to DIFMOS.

As discussed in more detail below, DIFUPSET was part of the Strengths and Difficulties Questionnaire Extended (SDQ-EX) which, according to the 2001 and 2003-2004 Field Representative's Manuals, was included "to monitor emotional and behavioral problems in children and the impact that these problems have on children's lives." More specifically, in these years, DIFUPSET was part of a section of the SDQ-EX which the NHIS Survey Descriptions for 2001 forward describe as "extended questions that provide information on the duration of a child's problem and the impact that problem has on the child and his/her family."

After collecting the information for DIFUPSET, interviewers asked other follow-up questions.

 

These follow-up questions asked whether the difficulties interfered with the child's everyday life (DIFHOME, DIFFRIEND, DIFLEARN, DIFLEISURE) and burdened the child's family (DIFBURDEN).

Strengths and Difficulties Questionnaire Extended

DIFUPSET is part of a set of 33 questions from the Strengths and Difficulties Questionnaire Extended (SDQ-EX) developed by Dr. Robert Goodman, Institute of Psychiatry, London, England.

 

As the Appendix on SDQ in the 2001 and 2003-2004 Codebook of the NHIS public use files explains:

The parent respondent version of the SDQ was added as a mental health supplement for children ages 4-17 as part of a collaborative agreement between NCHS and the National Institute of Mental Health (NIMH). The first part of the SDQ consists of 25 scale items . . . These items can be divided into five subscales measuring the following psychological attributes or dimensions:
  • emotional symptoms;
  • conduct problems;
  • hyperactive behavior;
  • peer relationships;
  • prosocial behavior.

DIFUPSET was an element in the second part of the SDQ, which the same source describes as follows:

The second part of the SDQ, the extended questions . . . obtains additional information about the duration and impact of symptoms, which can be useful for determining psychiatric caseness.


More information on the SDQ-EX is available at www.sdqinfo.org. This source describes the second section of the SDQ-EX, which includes DIFUPSET, as the "Impact Supplement."

Changes to the SDQ-EX Impact Supplement Universe and Coding Structure
2001, 2003, and 2004 

In the 2001, 2003, and 2004 NHIS, if parents said (in EMODIFF) that the child had minor, definite, or severe difficulties with emotions, concentration, behavior, or getting along with others, they were asked how long the difficulties had been present (DIFMOS). In those three years, interviewers asked follow-up questions only if the reported duration of these difficulties was one month or longer. The follow-up questions about the impact of the difficulties on the child’s life were the basis of the following variables:

  • Difficulties upset or distress child (DIFUPSET)
  • Child's difficulties interfere with home life (DIFHOME)
  • Child's difficulties interfere with friendships (DIFFRIEND)
  • Child's difficulties interfere with classroom learning (DIFLEARN)
  • Child's difficulties interfere with leisure activities (DIFLEISURE)

As noted above, DIFUPSET was based on the question, "Do the difficulties upset or distress your child?" The remaining four variables were based on the query, "Do the difficulties interfere with your child's everyday life in the following areas: Home life? Friendships? Classroom learning? Leisure activities?"

If parents responded "no" to the opening question about whether the child had difficulties with emotions, concentration, behavior, or getting along with others (EMODIFF), none of these five questions were asked. In such cases, when parents "are not asked to complete the questions on resultant distress or impairment," the Scoring Guide states, "the impact score is automatically scored zero." The same is true when, in DIFMOS, parents reported that difficulty in these areas lasted less than 1 month (and thereby avoided these follow-up questions on "resultant distress or impairment"). To simplify the calculation of the impact score for such persons, IPUMS NHIS staff recoded those who answered "no" to EMODIFF and those who answered "less than 1 month" to DIFMOS to the code "No difficulty or no difficulty for greater than or equal to 1 month" (a code of 00).

2019 forward 

Contrary to 2001, 2003, and 2004, beginning in 2019, interviewers asked the follow-up questions about the impact of the difficulties on the child’s life (DIFUPSET, DIFHOME, DIFFRIEND, DIFLEARN, and DIFLEISURE), no matter how long the difficulties had been present, as reported in DIFMOS.

To increase congruency with the 2001, 2003, and 2004 samples, IPUMS NHIS staff recoded those who answered "no difficulty" to EMODIFF to the code 00, "No difficulty or no difficulty for greater than or equal to 1 month" in 2019 forward. When using the impact variables to calculate an impact score, this approach is compatible with guidelines from the SDQ Scoring Guide, which state that when respondents answer "no" to EMODIFF, they are not asked the follow-up questions on distress or impairment and the impact score is automatically set to zero.

Calculating a Score for the SDQ-EX Impact Supplement 

IPUMS NHIS offers the impact score as the variable DIFSCORE. Prior to 2019, IPUMS NHIS staff constructed DIFSCORE by following the process listed below. Beginning in 2019, NHIS began offering the impact score as a variable constructed by following the guidelines in the SDQ Scoring Guide. DIFSCORE sums the scores received across DIFUPSET, DIFHOME, DIFFRIEND, DIFLEARN, and DIFLEISURE to indicate the impact of the difficulties on the child’s life. Users should note that, due to the changes in universe for the five impact variables, those persons in universe for an impact score also change over time. In 2001, 2003, and 2004, only those who answered that their difficulties lasted greater than or equal to 1 month in DIFMOS could be asked the impact questions and therefore have an impact score calculated. In 2019 forward, all persons who indicated they had difficulties in EMODIFF were asked the five impact questions. Therefore, someone who indicated their difficulties lasted less than 1 month could have a non-zero impact score in 2019 but would have a score of 0 in the earlier years.

The SDQ Scoring Guide provides guidance on how responses for these five variables "can be summed to generate an impact score that ranges from 0 to 10 for the parent-completed version." Under these guidelines, the responses "not at all" and "a little" are given a score of 0; a response of "a medium amount" is given a score of 1; and a response of "a great deal" is given a score of 2. For each of these variables, a score of 0 implies the least impact from the child's difficulty, and a score of 2 implies the greatest impact from the child's difficulty. If the scores for these five variables are summed, the total ranges from 0 to 10, with 0 implying the least impact from the child's difficulties and 10 implying the greatest impact from the child's difficulties.

Users may choose to manually calculate an impact score instead of using DIFSCORE. The five variables that can be summed to create a total impact score receive codes in IPUMS NHIS that facilitate this scoring process. Responses that should receive a score of 0 in the scoring process--namely, "not at all" or "a little"--receive a code of 0 in the first digit. In addition, sample children with no reported difficulties (in EMODIFF) or with difficulties lasting "less than one month" (code 1 in DIFMOS) for 2001, 2003, and 2004 also receive a code of 0 in the first digit in these five variables. (The three different categories, "No difficulty or no difficulty for greater than or equal to 1 month," "not at all," and "a little" can still be distinguished from each other by the respective values of 0, 1, and 2 in the second digit.) The response "a medium amount," which should receive a score of 1, receives a code of 1 in the first digit (and a code of 0 in the second digit). The response "a great deal," which should receive a score of 2, receives a code of 2 in the first digit (and a code of 0 in the second digit). Cases which should be excluded from this summing of scores--that is, not in universe cases consisting of persons other than sample children age 4-17, and cases with a response of "unknown"--all receive a code of 9 in the first digit (with the second digit distinguishing between those not in the variable universe and unknowns).

Put succinctly, to calculate an "impact score" for the child's difficulties, researchers should 1) exclude cases beginning with a code of 9; 2) group together other categories that share a common first digit; 3) sum the scores across the five variables, using only the first digit of the codes for each variable. The result will range from 0 to 10.

According to the SDQ Scoring Guide , the impact score can be used as a continuous variable, but it is sometimes convenient to classify it into broader categories for easier interpretation of results. Under the original three-band categorization, total impact scores can be identified as normal, borderline, or abnormal: a total impact score of 2 or more is abnormal; a score of 1 is borderline; and a score of 0 is normal. Under the newer four-band categorization, total impact scores can be identified as close to average, slightly raised, high, or very high: a total impact score of 0 is close to average; a score of 1 is slightly raised; a score of 2 is high; and a score of 3 or higher is very high.

Individual Elements of the SDQ-EX Impact Supplement

Some researchers may prefer to use only some of the "impact" variables (DIFUPSET, DIFHOME, DIFFRIEND, DIFLEARN, and DIFLEISURE) discussed in the previous section, or to avoid combining their values in a single "impact score."

 

The same is true for EMODIFF (which reports whether the child had difficulties with emotions, concentration, behavior, or getting along with others) and DIFMOS (which reports the duration of such difficulties, if present). DIFBURDEN (which reports parents' answers to the question, "Do the difficulties put a burden on you or the family as a whole?") focuses on the effect of difficulties on family members other than the child. DIFBURDEN is thus excluded from the calculation of an "impact score" for the child, described in the previous section.

In the abbreviated version of the SDQ, which was part of the NHIS in 2002, 2005-2007, and 2010-2018, EMODIFF was the only element of the "impact supplement" from the SDQ-EX included in the survey.

Comparability

Aside from changes in the universe and the NHIS questionnaire redesign introduced in 2019, the variable DIFUPSET is completely comparable over time. This variable is an element of the extended version of the Strengths and Difficulties Questionnaire (SDQ-EX), which was fielded for sample children in the NHIS in 2001, 2003, 2004, and 2019 forward. It is not an element of the abbreviated version of SDQ, which was fielded for sample children in 2002, 2005-2007, and 2010-2018.

The NHIS questionnaire was substantially redesigned in 2019 to introduce a different data collection structure and new content. For more information on changes in terminology, universes, and data collection methods beginning in 2019, please see the user note.

Universe

  • 2001; 2003; 2004: Sample children age 4 to 17 who had a known response for whether they had difficulties with emotions, concentration, or behavior and had a known response for how many months their difficulties were present.
  • 2019: Sample children age 4 to 17 who have had minor, definite, or severe difficulties with emotions, concentration, behavior, or being able to get along with other people (EMODIFF).

Availability

  • 2001, 2003-2004, 2019

Weights