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[p. 98]

HOME CARE PAGE


Some people are limited in what they can do because of physical or mental condition; that is, they cannot do some of the daily activities that other people do.

1 a. Because of a disability or health problem, does anyone in the family, (that is you, your --, etc.), receive or need help from another person, or use special equipment in -
If "Yes," ask 1b and c


(1) Walking, except for using the stairs?
[] Y or "doesn't do"
[] N


(2) Going outside?
[] Y or "doesn't do"
[] N


(3) Using the toilet in the bathroom, including getting to the bathroom?
[] Y or "doesn't do"
[] N


(4) Bathing, including sponge baths?
[] Y or "doesn't do"
[] N


(5) Dressing?
[] Y or "doesn't do"
[] N


(6) Eating?
[] Y or "doesn't do"
[] N


(7) Getting in and out of bed or chairs?
[] Y or "doesn't do"
[] N

b. Who is this?

____

c. Does anyone else receive or need help or use special equipment in - ?

____


[MK Note: The following is a table to enter responses in for question 1. There are four rows to enter responses in]

Person number (a)

____

Activity (b)

____

Doesn't do (c)

[] Doesn't do (Mark H box, THEN 1c)
If "doesn't do," go to next line.


Does -- use any special equipment in (activity)? (d)

1 [] Y
2 [] N


Does -- receive or need the help of another person in (activity)? (e)

1 [] Y
2 [] N (Next line)


Does -- need help from another person in (activity) most of the time, some of the time, or once in a while? (f)

1 [] All/most (Mark H box)
2 [] Some (Mark H box)
3 [] Once (Mark H box)
4 [] Never (Mark H box)
8 [] Other - Specify ____ (Mark H box)


2 a. Because of a disability or health problem, does anyone in the family receive or need help from another person in -
If "Yes," ask 2b and c.

(1) Preparing their own meals?
[] Y
[] N
(2) Shopping for personal items, such as magazines, toilet items, or medicines?
[] Y
[] N
(3) Doing routine household chores, not including yard work?
[] Y
[] N
(4) Handling their own money?
[] Y
[] N

b. Who is this?

____

c. Does anyone else receive or need help in - ?

____
1 [] Meals (Mark H box)
2 [] Shopping (Mark H box)
3 [] Chores (Mark H box)
4 [] Handling money (Mark H box)


3 a. Because of disability or health problem does anyone in the family usually stay in bed all or most of the time?

[] Y
[] N (4)

b. Who is this? Mark box in person's column.

____
1 [] Stays in bed (H box THEN 3c)

c. Anyone else?

[] Y (Reask 3b and c)
[] N


Mark box or ask:
4 a. What (other) condition causes -- to (need help in activities in 1 and 2/ (or) stay in bed)?

____
[] No H box (NP)

b. Does any other condition cause -- to (need help in activities in 1 and 2/ (or) stay in bed)?

1 [] Y (Reask 4a and b)
2 [] N

Mark box or ask:
c. Which of these conditions would you say is the main condition that causes -- to (need help in activities in 1 and 2/ (or) stay in bed)?

[] Old age only (NP)
[] Only one condition
Main condition ____


HC1
Refer to item C2 to determine if a condition page was completed for the main condition in 4. Enter condition number, or mark box.

Cond. Number ____ (NP)
[] No condition page

5. When did -- first notice his (main condition in 4)?

1 [] Last week
2 [] Week before
3 [] Past 2 weeks, DK which
4 [] 2 weeks - 3 months
5 [] Over 3-12 months
6 [] More than 12 months ago

[p. 99]

HOME CARE PAGE - Continued

[MK Note: The following is a table to enter responses in for question 1 on page 98. There are four rows to enter responses in]

Person number (a)

____

Activity (b)

____

Doesn't do (c)

[] Doesn't do (Mark H box, THEN 1c)
If "doesn't do," go to next line.

Does -- use any special equipment in (activity)? (d)

1 [] Y
2 [] N

Does -- receive or need the help of another person in (activity)? (e)

1 [] Y
2 [] N (Next line)

Does -- need help from another person in (activity) most of the time, some of the time, or once in a while? (f)

1 [] All/most (Mark H box)
2 [] Some (Mark H box)
3 [] Once (Mark H box)
4 [] Never (Mark H box)
8 [] Other - Specify ____ (Mark H box)


[MK Note: The following is a response sheet for questions asked on page 98. There are five columns to enter responses in; only one is represented here since they each contain the same information.]

(Columns 2-6)
2b.

1 [] Meals (Mark H box)
2 [] Shopping (Mark H box)
3 [] Chores (Mark H box)
4 [] Handling money (Mark H box)

3b.

1 [] Stays in bed (H box THEN 3c)

4a.

[] No H box (NP)
____

b.

1 [] Y (Reask 4a and b)
2 [] N

Mark box or ask:
c.

[] Old age only (NP)
[] Only one condition
Main condition ____
HC1
Cond. Number ____ (NP)
[] No condition page

5.

1 [] Last week
2 [] Week before
3 [] Past 2 weeks, DK which
4 [] 2 weeks - 3 months
5 [] Over 3-12 months
6 [] More than 12 months ago

[p. 100]

HOME CARE PAGE - Continued


6 a. Does anyone in the family have a colostomy, a urinary catheter, or any other device to help control bowel movements or urination?

[] Y
[] N (7)

b. Who is this? Mark "Device" box in person's column.

1 [] Device

c. Anyone else?

[] Y (Reask 6b and c)
[] N


If "Device," ask 6d and e
d. Which does -- have - a colostomy, a catheter, or another type of device?

1 [] Colostomy
2 [] Catheter
8 [] Other - Specify ____


e. Does -- receive or need help from another person in taking care of his (device in 6d)?

1 [] Y (Mark H box then NP)
2 [] N


7 a. (Besides --) Does anyone (else) in the family have any accidents or any trouble controlling their bowel movements or urination?

[] Y
[] N (8)

b. Who is this? Mark "Trouble controlling" box in person's column.

1 [] Trouble controlling

c. Anyone else?

[] Y (Reask 7b and c)
[] N


8 a. Does anyone in the family (that is you, your --, etc.) now use (any of the following special aids)-
If "Yes," ask 8b and c


(1) An artificial arm?
[] Y
[] N


(2) An artificial leg?
[] Y
[] N


(3) A brace of any kind? (If "Yes," ask: On what part of the body is the brace worn?
[] Y
[] N


(4) Crutches?
[] Y
[] N


(5) A cane or walking stick?
[] Y
[] N


(6) Special shoes?
[] Y
[] N


(7) A wheel chair?
[] Y
[] N


(8) A walker?
[] Y
[] N


(9) A guide dog?
[] Y
[] N


(10) Any other kind of aid for getting around?
[] Y
[] N

b. Who is this? Mark box in person's column.

1 [] Artificial arm
2 [] Artificial leg
3 [] Brace - Part of body ____
4 [] Crutches
5 [] Cane or walking stick
6 [] Special shoes
7 [] Wheel chair
8 [] Walker
9 [] Guide dog
10 [] Other - Specify ____

c. Anyone else?

____


9 a. Does anyone in the family use -

(1) Eyeglasses?
[] Y
[] N
(2) Contact lenses?
[] Y
[] N
(3) A hearing aid?
[] Y
[] N

b. Who is this? Mark box in person's column

1 [] Eyeglasses
2 [] Contact lenses
3 [] Hearing aid

c. Anyone else?

____


10 a. Does anyone in the family receive help here at home with -


(1) Receiving injections or shots?
[] Y
[] N


(2) Physical therapy?
[] Y
[] N


(3) Changing bandages?
[] Y
[] N


(8) Any other nursing or medical treatments?
[] Y
[] N

b. Who is this? Mark box in person's column

1 [] Injections
2 [] Physical therapy
3 [] Bandages
8 [] Other - Specify ____

c. Anyone else?

____

[p. 101]


[MK Note: The following is a response sheet for questions asked on page 100. The response sheet contains five columns to enter responses in; only one is represented here since each column contains the same information.]

6b.

1 [] Device

d.

1 [] Colostomy
2 [] Catheter
8 [] Other - Specify ____

e.

1 [] Y (Mark H box then NP)
2 [] N

7b.

1 [] Trouble controlling

8b.

1 [] Artificial arm
2 [] Artificial leg
3 [] Brace - Part of body ____
4 [] Crutches
5 [] Cane or walking stick
6 [] Special shoes
7 [] Wheel chair
8 [] Walker
9 [] Guide dog
10 [] Other - specify ____

9b.

1 [] Eyeglasses
2 [] Contact lenses
3 [] Hearing aid

c. Anyone else?

____

10b.

1 [] Injections
2 [] Physical therapy
3 [] Bandages
8 [] Other - Specify ____

[p. 102]

HOME CARE PAGE - Continued


11 a. During the past 12 months, (that is since (date) a year ago) has anyone in the family received meals that were prepared outside the home and brought on a fairly regular basis?

[] Y
[] N (12)

b. Who received the meals? Mark "Meals" box in person's column.

1 [] Meals

c. Anyone else?

[] Y (Reask 11b and c)
[] N


If "Meals" in 11b, ask 11d-e
d. Does -- now regularly receive meals that are prepared outside the home and brought in?

1 [] Y
2 [] N (NP)


e. What agency, organization or program provides these meals for --?

________


12a. During the past 12 months, has anyone in the family received any care at home from a nurse? Exclude related HH members.

[] Y
[] N (IHCP)

b. Who received this care? Mark "Nurse" box in person's column.

1 [] Nurse

c. Anyone else?

[] Y (Reask 12b and c)
[] N

[p. 103]


[MK Note: Page 103 contains a response sheet for questions asked on page 102. The response sheet has five columns to enter information in; only one is represented here since each column contains the same information.]

11b.

1 [] Meals

d.

1 [] Y
2 [] N (NP)

e.

____

12b.

1 [] Nurse

[p. 104]

INDIVIDUAL HOME CARE PAGE

Complete for each person with H box

1. Person number

____


2 a. Earlier you said that -- receives or needs the help of another person. Who helps --?
(Is -- helped by anyone who lives here, by any other friends or relatives, a nurse, or any other health care professionals who come into the home, or is -- helped by someone eles?)

1 [] Related HH members
2 [] Nurse
3 [] Other health worker - specify ____
4 [] Other relatives or friends
8 [] Other - Specify ____

b. Does anyone else help --?

[] Y (Reask 2a and b)
[] N


If "Nurse" in 2a, ask:
3 a. On the average, how many days per week does the nurse visit --?

Days per week ____


b. When the nurse visits, how many hours per day does he or she usually spend helping --?

00 [] Less than 1 hour
Hours ____


c. Does anyone in the family, that is you, your --, etc. pay any part of the cost for the nurse?

1 [] Y
2 [] N


d. Does any government agency or program help pay for the nurse?

1 [] Y
2 [] N (3f)


e. What agency or program helps pay?

1 [] Medicaid
2 [] Medicare
3 [] Health insurance
[] Other - Specify ____


f. During the past 2 weeks, how many times was -- visited by the nurse?

Number of times ____


If "Other health worker" in 2a, ask:
4 a. On the average, how many days per week does the (other health worker) visit --?

Days per week ____


b. When the (other health worker) visits, how many hours per day does he or she usually spend helping --?

00 [] Less than 1 hour
Hours ____


c. Does anyone in the family, that is you, your --, etc. pay any part of the cost for the (other health worker)?

1 [] Y
2 [] N


d. Does any government agency or program help pay for the (other health worker)?

1 [] Y
2 [] N (4f)


e. What agency or program helps pay?

1 [] Medicaid
2 [] Medicare
3 [] Health insurance
[] Other - specify ____


f. During the past 2 weeks, how many times was -- visited by the (other health worker)?

Number of times ____


HC2

1 [] Under 17 (NP)
2 [] 17+

5 a. Does -- receive or need help from others in using public transportation, such as buses, trains, subways, or planes?

1 [] Y (6)
2 [] N
4 [] Doesn't use (5c)


b. Does -- use public transportation?

1 [] Y (6)
2 [] N


c. If -- had to use public transportation, would -- need the help of other persons?

1 [] Y
2 [] N


6 a. Does --drive a car?

1 [] Y (7)
2 [] N


b. Does -- not drive a car because of a disability or health problem or because of some other reason?

1 [] Age
2 [] Disability
8 [] Other


7 a. Does -- use the telephone without the help of another person?

1 [] Y (8)
2 [] N


b. Would -- be able to use the telephone in an emergency?

1 [] Y
2 [] N


8 a. During the 2 weeks outlined in red on the calendar, did -- have any visits from a friend, relative or neighbor?

1 [] Y
2 [] N (8c)


b. How many times during that period was -- visited by friends, relatives, or neighbors?
(Was it 3 times or more or less than 3 times?)
(Was it 12 or more times or less than 12 times?)

1 [] 1-3 times
2 [] 4-12 times
3 [] 13+ times


c. During these 2 weeks, did -- go out to visit a friend, relative or neighbor?

1 [] Y
2 [] N (9)


d. How many times during that period did -- go out to visit friends, relatives or neighbors?
(Was it 3 or more times or less than 3 times?
(Was it 12 or more times or less than 12 times?)

1 [] 1-3 times
2 [] 4-12 times
3 [] 13+ times


9. During the past 12 months, did -- go on a vacation?

1 [] Y
2 [] N


10. Because of a disability or health problem, how often must someone be here with --, most of the time, some of the time, once in a while or never?

1 [] Most/All
2 [] Some
3 [] Once
4 [] Never
8 [] Other - Specify ____

[p. 105]


[MK Note: Page 105 contains a response sheet for questions asked on page 104. The response sheet has 3 columns to enter responses in; only one is represented here since each column contains the same information]

1. Person number

____

2a.

1 [] Related HH members
2 [] Nurse
3 [] Other health worker - Specify ____
4 [] Other relatives or friends
8 [] Other - Specify ____

b.

[] Y (Reask 2a and b)
[] N

3a.

Days per week ____

b.

00 [] Less than 1 hour
Hours ____

c.

1 [] Y
2 [] N

d.

1 [] Y
2 [] N (3f)

e.

1 [] Medicaid
2 [] Medicare
3 [] Health insurance
[] Other - Specify ____

f.

Number of times ____


4a.

Days per week ____

b.

00 [] Less than 1 hour
Hours ____

c.

1 [] Y
2 [] N

d.

1 [] Y
2 [] N (4f)

e.

1 [] Medicaid
2 [] Medicare
3 [] Health insurance
[] Other - Specify ____

f.

Number of times ____

HC2

1 [] Under 17
2 [] 17+
5a.

1 [] Y (6)
2 [] N
4 [] Doesn't use (5c)

b.

1 [] Y (6)
2 [] N

c.

1 [] Y
2 [] N

6a.

1 [] Y (7)
2 [] N

b.

1 [] Age
2 [] Disability
8 [] Other

7a.

1 [] Y (8)
2 [] N

b.

1 [] Y
2 [] N

8a.

1 [] Y
2 [] N (8c)

b.

1 [] 1-3 times
2 [] 4-12 times
3 [] 13+ times

c.

1 [] Y
2 [] N (9)

d.

1 [] 1-3 times
2 [] 4-12 times
3 [] 13+ times

9.

1 [] Y
2 [] N

10.

1 [] Most/All
2 [] Some
3 [] Once
4 [] Never
8 [] Other - Specify ____